H2020Индивидуална стипендия2017–2018

AIDSsilences · The Power of Silence: A Medical Anthropological Approach to AIDS Care Narratives

„Хоризонт 2020“ — Действия „Мария Склодовска-Кюри“

Период: 2017-01-01 → 2018-12-31
Финансиране от ЕС: 174 865 €
Участници: 2
Схема: MSCA-IF-GF

Линиите свързват координатора с партньорите.

Накратко на български

Мълчанието в разговорите между пациенти с ХИВ/СИДС и техните лекари се анализира чрез интервюта и наблюдения в Индонезия. Разбирането на неказаното помага за подобряване на медицинската грижа и обслужването на хората, които страдат от стигма.

Този кратък обзор е генериран от изкуствен интелект

Кратко обяснение, генерирано от езиков модел по текста на CORDIS. Оригиналът е по-долу.

Резултати накратко

The Power of Silence: A Medical Anthropological Approach to AIDS Care Narratives

"How do silences structure and surround narratives of illness and care? And how may understanding such silences improve healthcare practices? This project addresses these questions by developing theoretical and methodological tools for attending to silences in illness narratives. It does so by drawing on qualitative empirical data that concern one of the most haunting epidemics of our time: HIV/AIDS. As people with HIV/AIDS remain stigmatized in most parts of the world, and social scientific attention to their active uses of silence is emerging, it is crucially important to develop better knowledge of the different roles played by silence in AIDS care interactions. Increasing the attention to the unspoken, unspeakable and that which lies beyond articulation among social scientists, policy makers, and healthcare practitioners will therefore have huge benefits to society. The key objectives of this study are: 1. To conceptualize how silences shape AIDS care, by analyzing narratives of people living with HIV/AIDS and caregiving institutions 2. To theorize the relation between silence and narrative 3. To develop a qualitative methodology for recognizing, inquiring into, and understanding respondents’ silences To attain these objectives, the project draws on ethnographic material gathered in AIDS care interactions in Indonesia as well as on interviews with policy makers in the field of Global Health. It particularly develops tools to theorize and interpret silences based on person-centered ethnography, narrative phenomenology, and a sustained ethical reflection on social scientific approaches of silences and care. Conclusions of the action include: 1. theorization of the relation between policital and psychological silences (in peer-reviewed publications) 2. development of the concept of ""narrative navigation"" to study narratives and silences in health care (in peer-reviewed publications) 3. continuing reflection on the ethics and methodologies of studying the unknown, unspoken, unspeakable (in special issue in preparation, on popular weblog anthropologyofsilence.com)"

Текст от CORDIS, на английски · Данни: CORDIS, © Европейски съюз

Цел на проекта

Despite the widespread availability of antiretroviral medication, the global AIDS epidemic has not been halted yet and stigmatization of people living with HIV and AIDS continues in most parts of the world. While the social scientific analysis of narratives of people living with HIV/AIDS (PLWHA) has proven crucial in understanding challenges in AIDS care worldwide, the silences that structure such narratives remain under-theorized. Current studies signal that silences may be defenses and active strategies rather than passive responses to stigma, but critical questions remain on how to study, conceptualize and interpret what is unspeakable and unspoken, and sometimes even unthinkable. This project develops novel analytical tools to understand silences in illness narratives. It is based on empirical data gathered in Indonesia and New York. Its objectives are threefold:1) To conceptualize how silences shape AIDS care, by analyzing narratives of PLWHA and caregiving institutions (conceptual/empirical goal)2) To theorize the relation between silence and narrative (theoretical goal)3) To develop a qualitative methodology for recognizing, inquiring into, and understanding respondents’ silences (epistemological/methodological goal) In order to reach these objectives, the researcher will receive advanced training at Harvard University, which is on the forefront of developing multidisciplinary scientific research on HIV/AIDS and narrative theory. The expertise developed at Harvard University will strengthen the medical anthropology program of the University of Amsterdam, which houses the return phase of the project. The project will enhance the career opportunities of the researcher and promises to make significant contributions to the understanding of narratives and silences in AIDS care. These insights are highly relevant for policymakers in the global fight against AIDS and for social scientists who work in the field of global medicine.

Оригинален текст от CORDIS (на английски).

Участници

UNIVERSITEIT LEIDEN · LeidenКоординаторНидерландия
PRESIDENT AND FELLOWS OF HARVARD COLLEGE · CambridgeСъединени щати