HEИндивидуална стипендия2023–2026

COMMONS · THE PATIENT LED COMMONIFICATION OF HEALTHCARE?’ the case of DIY-Diabetes: an ethnographic Study

„Хоризонт Европа“ — Действия „Мария Склодовска-Кюри“

Период: 2023-09-01 → 2026-12-31
Финансиране от ЕС: 269 915 €
Участници: 3
Схема: HORIZON-TMA-MSCA-PF-GF

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Накратко на български

Общности от пациенти с диабет създават собствени системи за автоматично подаване на инсулин чрез отворен код. Анализът на този модел помага да се разбере как споделеното производство на технологии може да подобри достъпа до здравеопазване.

Този кратък обзор е генериран от изкуствен интелект

Кратко обяснение, генерирано от езиков модел по текста на CORDIS. Оригиналът е по-долу.

Резултати накратко

THE PATIENT LED COMMONIFICATION OF HEALTHCARE?’ the case of DIY-Diabetes: an ethnographic Study

Medical technologies have historically been the domain of private entities (e.g. the pharmaceutical industry) and public institutions (e.g. the NHS). However, this market-state model is being challenged by the emergence of self-organised patient communities who co-create their own medical technologies. The COMMONS project focuses on the so-called #WeAreNotWaiting movement, a community of people living with diabetes who modify existing diabetes management devices through open-source innovation. Over the last decade or so of its existence, members of the #WeAreNotWaiting movement have created a safe and effective set of life-critical medical technologies, known as open-source automated insulin delivery (OS AID) systems, for the management of diabetes. As such, the movement represents a unique case study in which to examine the affordances and constraints of commons-based peer production in contemporary healthcare and to critically examine its transformational potential. Through taking the #WeAreNotWaiting movement as its primary case study, the project seeks to examine how commons based peer production has the potential to transform the development and diffusion of healthcare technologies and the broader implications of this for equity in healthcare outcomes. It also the examines some of the challenges to the longer term sustainability of the community. The Fellow is conducting this work in close collaboration with his supervisors Profs Hélène Mialet at the Department of Science and Technology studies, York University and Susi Geiger School of Business, University College Dublin as well as Dr Bryan Cleal at the Steno Diabetes Centre, Copenhagen (SDCC) and Prof Muireann Quigley, Birmingham Law School, University of Birmingham.

Текст от CORDIS, на английски · Данни: CORDIS, © Европейски съюз

Цел на проекта

The aim of this project is to examine how commons-based peer production is impacting healthcare ecosystem dynamics and the lived experience of people with diabetes (PwD). The project focuses on communities of PwD who, collaborating online via open-source forms of knowledge exchange, are increasingly empowered to create and modify diabetes technologies to better meet their medical needs. Since its emergence in 2013, this patient-led commons has produced a range of innovations that can help improve clinical outcomes and quality-of-life. However, these innovations sit outside of commercial and regulatory processes and create dilemmas for healthcare professionals, regulators and industry. Furthermore, the central role of technology in this community has raised questions about who can participate in and benefit from its innovations. Through in-depth interviews and ethnographic observations, this project aims to capture the understandings of key stakeholders as to how and why the patient-led commons came to be as well as their visions of its role in the future of diabetes care. It ill shed light on how patient-led innovation is potentially transforming the development and diffusion of healthcare technologies and the implications of this for equity in healthcare outcomes. It is anticipated that the findings will help decision-makers to determine what sort of collaborations or partnerships can be developed between the patient-led commons and established ecosystem players to address the needs of PwD and other chronic conditions. The project includes a training programme supported by an international team of prominent scholars in science and technology studies and will provide opportunities for learning and networking that will help consolidate the Fellow as an emerging leader in patient-oriented research. Overall, the Fellowship alligns with the EC’s commitment to the inducement, uptake and scaling-up of social innovation in Europe as well as 3,5&8 of the UN SDGs.

Оригинален текст от CORDIS (на английски).

Участници

UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN · DublinКоординаторИрландия
REGION HOVEDSTADEN · HillerodДания
YORK UNIVERSITY · TorontoКанада